Hi everyone, my name is Kennedy. I was born on January 27th, 1998 at the Saint John Regional Hospital at 6:59am. I weighed in at 7 lbs 14 oz. I didn't give my mommy a hard time at all when I was getting here, making things MUCH easier on my dad, too!
Kennedy at about 1 week of age,
breathing through an oral airway.
It was easy getting here; however, it was hard to breathe as soon as I got out and the doctors discovered that my airway in my nose didn't open up right when I was inside of my mommy. This is called "bilateral choanal atresia". For the first seven weeks of my life, I used an oral airway to breathe with. My daddy thought of a really neat way to tie the airway around my head so that I didn't have to have tape all over my face(if anyone seeing or reading this would like to know how we tied up the airway, feel free to email us!). The atresia is sometimes a sign of some other things, and through a series of tests, the doctors discovered that I had CHARGE syndrome.
I am in grade four at public school and I do most of the regular curriculum with some modifications in math and language arts. I sing in my school choir and I participate in weekly lunch time intramurals at school.
My best subject is spelling and my favourite subject is math! I love school and all of my friends.
I attend Girl Guides, and the Girl Guides of Canada even featured me on their web site. I am very excited to be in the Red Rose Patrol. I am in my second year of bowling in a weekly league on a team and I have an average of about 60 right now. I have a great time bowling with my friends Jenna & Marysa.
I love to chat on the phone, I also enjoy playing on the computer, looking at High School Musical and Hannah Montana videos on YouTube are my favourite right now. The most exciting thing that happened so far in 2007 is that I started to eat by mouth and I got my feeding button taken out in November!
