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This is an assortment of links to web sites or articles we have accumulated over the years about CHARGE syndrome and Kennedy's associated conditions. If you find any broken links or know of any that should be included, please email me. Thank you!

Behavior Articles
In January 2005, the American Journal of Medical Genetics devoted an entire special section to CHARGE Syndrome; these articles pertained in particular to the behaviors seen in individuals who have CHARGE syndrome. The group has granted access to the CHARGE Syndrome Foundation (US), and the articles can be found here.

CHARGE CONFERENCE 2005 - Miami
Once again, the CHARGE Syndrome Foundation planned and presented a wonderful conference. I was thrilled to have been accompanied for the first time by Graeme, who also thoroughly enjoyed it. The highlight for me was having the adults with CHARGE syndrome get up to do a speech and then entertain questions from the crowd. When I say "entertain" I mean "entertain" - these young people gave wonderful and witty speeches and had the crowd in stitches with their great sense of humour. I think they are amazing and that they have done so much for the younger families who are still wondering what to expect!
If you would like to view the photos that we took on our trip to the conference, please visit: Graeme & Lisa's Miami Photos.
Thank you to everyone involved with this wonderful event. Future conference information can be found at the CHARGE Syndrome Foundation web site.

Assorted CHARGE Links CHARGE Syndrome Foundation Assorted CHARGE articles CHARGE Association/Syndrome National Organization for Rare Diseases CHARGE article The CHARGE Family Support Group -- UK German CHARGE Syndrome Group Canadian CHARGE Syndrome Group Expedition Earth: In February 2008, Tina, Ruan and their dog Akela, will embark on an 8000km trek on foot across Europe to raise awareness about CHARGE Syndrome. Please click the logo above to visit them and read more!

CHARGE Families Online Adele's Site - username:baby      password:sugar Minnow's CHARGE WebPage David's CHARGE homepage Melissa's Home Page Mannula's Home Page Chantelle's Home Page The Williams family homepage Susy's CHARGE page - in Spanish Cheyanne's Home Page Cameron Anderson's Blogspot Page Mighty Max's Blogspot Page Ben Russo's Web Site Evan Storr's Web Site Maya Kelly's Web Site Cedie Lynn Mock's Blog Eva Masionis' Web Site The Begas Family from Australia Neal and Jenny

CHARGE Syndrome Listserv This is a link to join the CHARGE Syndrome listserv, with over 1000 members from all over the world; this is the most valuable source for information and support regarding CHARGE Syndrome I could point anyone to! I've been moderating this listserv since '99, so if you have any questions at all please contact me. Subscribe to CHARGE Powered by health.groups.yahoo.com

Other Helpful Sites Special Child Magazine Family Village Deaf Blind Link Listen Up! - info about hearing, aids, etc The Canadian National Society of the Deaf-Blind, Inc. TheCanadian Deafblind and Ruebella Association Deafblind UK Deafblind Info Katelyn's Hope Deaf Children Resources for Learning Disabilities G-Tube Information Fundoplication Information Deafblind Info Cranial Nerve Information Choanal Atresia - clear x-ray of bony choanal atresia Another Choanal Atresia Page Coloboma Information Kids with Heart Congenital Heart Disease Info & Resources PediHeart Website Heart Disease Resource Library Heart of a Child Online Medical Dictionary Online Drug Information I'm Tyler - an amazing video made by a high school student whose mission is "to educate the world about Ability Awareness" VERY POWERFUL!

CHARGE Syndrome Photo Site If you are interested in seeing a lot of other really CUTE kids and AMAZING teenagers and adults who also have CHARGE syndrome, please visit the: CHARGE Syndrome Photo Site. I started this site for the photos because the listserv photo space was limited and I wanted as many families who wanted to send in photos of their child to be able to.